These blinds have been sitting on my deck for longer than I care to admit. They symbolize the double work of chronic illness. See, I am intermittently functional. There are days that my body can do just about anything, and then there are days where even my hair hurts. The ratio of functioning days toContinue reading “Deck Blinds”
Tag Archives: chronic illness
Gratitude within a Flare
It started in the early morning, and I woke up and took my meds and applied biofreeze and drank water and tried to get more rest (which did not work).
Returning to Joyfulness
It’s been a minute. Hello and happy Spring. The sun has returned and life springs anew. Flowers are blooming and birds are singing and I find myself smiling to myself on my walks– staring up at the trees in wonder. Wonder and Joy have been big themes for me lately. I’m doing a play, aContinue reading “Returning to Joyfulness”
Increased Agitation
And everything feels chaotic because it kinda is.
So I try to handle the things that I can.
Ancestors in Waiting
In our little kitchen nook I’ve created a family tree. Names and dates and photos with twinkle lights draped around. A little altar of sorts. Tonight, kidlette sat next to it, drinking her warm water before bed, and suddenly she burst into tears. “I will be so sad when you die! Who will take careContinue reading “Ancestors in Waiting”
Pretty Good Ugly 